In early 2020, when Covid-19 was rapidly developing into a disastrous pandemic, many patients died of Acute Respiratory Distress Syndrome, a condition of the lungs caused by an over-reaction (cytokine storm) of the immune system. It was pointed out at the time that a...
The British National Health Service tests for prostate cancer only when there are clearly identified symptoms, determined by a doctor. Even though many men and their family have reasons to want a test before they have clear symptoms. There is a rationale for the...
This week an update on a local Dutch issue: the elections for Parliament. For those interested the English translation is provided below. Dat voor ons als Patient Advocates de nationale politiek belangrijk is, moge duidelijk blijken uit de meters die we ook met de...
This is the final update where we present a section of our prospectus. It may be the most controversial part. The participation model of the World Campus is relatively open. We expect this to be a strength. Despite many countries having contrasting political cultures,...
It has been just over a year since we took the initiative to help the Dutch Member of Parliament, Léonie Sazias (50PLUS) in writing an initiative on access to Whole Genome Sequencing (WGS). Later on her efforts were joinend by two other Members of Parliament, Joba van...
