HENARAN charitable foundation is a national cancer patient advocacy organisation in Armenia – a small land-locked country in the South Caucasus with 3mln population not having adequate access to cancer care. I have the honour to lead HENARAN. The first contact between Inspire2Live and HENARAN was established by Peter Kapitein in June 2019, and a…Continue reading ‘The light in complete darkness’
Cinderella donates to the patients
Cinderella Therapeutics started as a foundation to bring ‘stepchild’ medicines (medicines that no company wants to produce) for a fair price to patients. From the beginning, there was a warm relation on joint initiatives with Inspire2Live. We share our focus on the patient and our activistic approach as well. The founder of Cinderella, Dick van…Continue reading Cinderella donates to the patients
New Years Dreams
At the end of 2010 we were heading for our first Inspire2Live Congress on the premisses of the Royal Academy of Arts and Sciences in Amsterdam. In the two weeks before Christmas I made a final dash to New York, Cold Spring Harbour and Boston. This was our 2020 Christmas Holiday. Despite the lock downs…Continue reading New Years Dreams
In memoriam: Linda Burger
In memoriam: Linda Burger. An indelible example of how a deadly cancer can be resisted for years with a great deal of joy, devotion to others, beauty, unshakeable sense and love for life. Please read her full in memoriam here..
World Campus Blues
Since I co-founded and re-joined Inspire2Live, my mood has always balanced between upbeat and sadness. I want to share with you some personal items regarding why I am so moved. It may give a glimpse what drives me to create with you a World Campus, which I was given the honour to initiate, establish and…Continue reading World Campus Blues
Oncologic pain in Africa: Revision and new options for treatment POSTPONED
Webinar: Oncologic pain in Africa: Revision and new options for treatment POSTPONED Unfortunately we have to postpone the webinar on pain management in Africa of next Thursday. There are unforeseen circumstances that prevent us from organizing the webinar. We work on a new day in January and let you know as soon as possible….Continue reading Oncologic pain in Africa: Revision and new options for treatment POSTPONED
The World Campus of Cancer
Inspire2Live is becoming a world campus. Cancer knows no boundaries. Finding better practices for prevention, diagnostics, treatment, after care and support is not limited to region or country. It is by pooling the knowledge of patient advocates and activists (scientists, doctors, nurses, educators) from all over the world, through joint actions and speaking with one…Continue reading The World Campus of Cancer
Is the patient really empowered in the Medical Industrial Complex
It may give us a pleasant feeling to think that the patient is well-informed, engaged and empowered. But I don’t think they are. With this in mind and due to another hype – ‘patient centricity’ – it makes me think of the Hollywood movies. When the director needed an Indian to get a shot of…Continue reading Is the patient really empowered in the Medical Industrial Complex
How to start a hub
An overview from Inspire2Live’s Egypt hub Along the years, Inspire2Live has brought together passionate, generous and inspirational individuals from around the world to connect, share and collaborate. Inspire2Live strives to improve patient-centricity in cancer research, advocating patient involvement in all forms of research and development, new treatment evaluations, clinical trials and patient care, to name…Continue reading How to start a hub
Pancreatic cancer and pain
In 2012 Inspire2Live visited dr. Tuveson in Cambridge and had a discussion on pancreatic cancer. ‘Pain is the most important thing pancreatic cancer patients have to deal with. When we take away the pain, we give them 6 to 12 months more with a good quality of life. Nobody is doing research on pain’. This…Continue reading Pancreatic cancer and pain