It may give us a pleasant feeling to think that the patient is well-informed, engaged and empowered. But I don’t think they are. With this in mind and due to another hype – ‘patient centricity’ – it makes me think of the Hollywood movies. When the director needed an Indian to get a shot of…Continue reading Is the patient really empowered in the Medical Industrial Complex
An overview from Inspire2Live’s Egypt hub Along the years, Inspire2Live has brought together passionate, generous and inspirational individuals from around the world to connect, share and collaborate. Inspire2Live strives to improve patient-centricity in cancer research, advocating patient involvement in all forms of research and development, new treatment evaluations, clinical trials and patient care, to name…Continue reading How to start a hub
In 2012 Inspire2Live visited dr. Tuveson in Cambridge and had a discussion on pancreatic cancer. ‘Pain is the most important thing pancreatic cancer patients have to deal with. When we take away the pain, we give them 6 to 12 months more with a good quality of life. Nobody is doing research on pain’. This…Continue reading Pancreatic cancer and pain
I was diagnosed with Stage IV Colon Cancer and given a prognosis of 3 to 5 months at Accident & Emergency. What a shock! Regular treatment had little effect but suddenly, the addition of a new biological drug seemed to work like a miracle, reducing the tumour in my liver so that it became resectable….Continue reading Continuum Long Term Survivor Study CLTSS
The 2nd edition of the National Cancer and Work Day (NCWD) will take place on Tuesday afternoon on November 10th. A virtual event, especially for employees, freelancers and employers. The NCWD is Organized by and for practitioners. The theme of the day is “Cancer and Work: what is possible?” An unknown world Every day about…Continue reading National Cancer and Work Day
Armenia is a small land-locked country in the South Caucasus with a population of 3mln people. All these people didn’t have adequate access to cancer care. Around 80% of all healthcare expenses were paid out-of-pocket. To provide a comprehensive picture of what is currently available in terms of cancer care, it is easier to say…Continue reading Hub update: Armenia
On the 24th of October we continue the session of our online symposium for cancer patients that started on the 10th of October with direct broadcasting. This online symposium is being organised through and for (ex)cancer patients and their loved ones. Various speakers, patients as well as professionals being doctors, oncologists or therapists give you…Continue reading Grip on your life after being hit by cancer – Online symposium, October 24, 2020
What makes Inspire2Live so different from other patient groups? And consequently what will make the Hubs different from other patient initiatives? This is an important question. It concerns our identity, is about who and what we want to be. This is my take: Inspire2Live upholds the idea that in its operation it mirrors the means…Continue reading What is our identity
With artificial intelligence and personalized medicine playing an increasingly important role in today’s healthcare, one cannot help but wonder about the regulation of these fields. As a Patient Advocate, I am asked to analyze the pros and cons of the ‘checks and balances’ system that exists today. According to my opinion too much regulation may…Continue reading Risks, costs, benefits and trust in healthcare: why and when do we trust
I wrote my first update (blog at the time) in 2010. It did not happen naturally. Peter wanted a verifiable record of the trips we made and the progress we hoped to achieve. It was meant to be a formal management-outline. I had written hundreds of those management outlines in my former job. I had…Continue reading Hub update: Europe
