Inspire2Live is cooperating with researchers, oncologists, pharmaceutical companies and health insurance companies towards personalized medicine for every patient who is about to get oncolytic medication. We had fruitful talks on a new model for personalized medicine we want to introduce in the Netherlands first and after that in all European countries. We are working closely together…Continue reading Initiatives for Personalized Medicine →

Embracing our ignorance is the gateway to transcend our arrogant use of evidence. This is when eminence emerges. Eminence is the quality people possess, acquired after years of engagement with a field of study. Yet, eminence is not the sole domain of science. It also resides in patients, who take decisions that fit their lives….Continue reading Inspire2Live Annual Congress 2020: Evidence, Arrogance, Ignorance, Eminence →

Recently, a Dutch talkshow host; Arjan Lubach, broadcasted a segment about the fact that October is a theme month. The stop smoking month, referred to as ‘Stoptober’ This segment was brought to our attention by one of our heroes, the relentless Wanda de Kanter. * For (English) subtitles: look for the ‘Subtitles/Closed Captions’ icon (‘CC’)…Continue reading Stoptober →

The MyData-movement is a unique blend of international societal, business, technological, legal and governmental stakeholders grouped around a concept that positions the individual citizen as the central entity through which any data use should be ethically endorsed. Not only health data, but any kind of data. The 4th international conference held between 25-27 of September…Continue reading The MyData 2019 conference: Rebuilding trust – for human-centered data economy →

On Saturday, October 19 through Monday, October 21, 2019, the Society for Integrative Oncology’s 16th International Conference presented an exceptional opportunity to learn about new findings in integrative oncology from healthcare/scientific disciplines that have the potential to transform cancer care internationally. The conference, co-hosted this year by Memorial Sloan Kettering Cancer Center, took place in…Continue reading Inspire2Live Update: Integrative Oncology →

October 22nd and 23rd Ilona Schelle and Peter Kapitein joined the Annual Congress of the Global Alliance for Genomics and Health (GA4GH). This organization contributes extremely to the availability of data for better research, treatments and quality of life for patients. It was a pleasure to join. Although it is not a good thing to…Continue reading Patients participation in research and the relevance of data →

At Inspire2Live we are already quite good in bringing the right people together in so called Discovery Networks and getting them to solve a specific problem in oncology. So far, we didn’t want to play a role in the aftermath of such a Network meeting and left the follow up to the other participants in…Continue reading Inspire2Live exploring new pathways to help Patient Advocates take their expertise a step further →

This is the question we asked to the chairman of the board of the OLVG, Maurice van den Bosch. The answer to this question was quite different from the answer weexpected. The answer was not about complicated governance structures or workgroups, no, the only way to find a good answer to this question was a…Continue reading How do you run a hospital →

Working as a couple, the Patient and the Carer, husband and wife, gives us unique opportunities to impart and share knowledge gained as advocates of Inspire2Live. I am the patient and I have been lucky enough to have a loving husband and family. I have been cared for and I recognise the stress that my…Continue reading Barbara & Mark Moss: we need to take care of the carer →

Since last Friday we are attending the ESMO 2019 congress, that will end by today. The ESMO congress is one of the global stages for the exchange and debate of cancer. The programme is impressive and as Patient Advocates we decided to attend the meetings focusing on our area of interest, the programme called ‘Patient…Continue reading The Patient Advocacy Track at ESMO 2019 in Barcelona →