Getting cancer under control and inspire people to lead happy and healthy lives in harmony with cancer
This is the question we asked to the chairman of the board of the OLVG, Maurice van den Bosch. The answer to this question was quite different from the answer weexpected. The answer was not about complicated governance structures or workgroups, no, the only way to find a good answer to this question was a…Continue reading How do you run a hospital
Working as a couple, the Patient and the Carer, husband and wife, gives us unique opportunities to impart and share knowledge gained as advocates of Inspire2Live. I am the patient and I have been lucky enough to have a loving husband and family. I have been cared for and I recognise the stress that my…Continue reading Barbara & Mark Moss: we need to take care of the carer
Since last Friday we are attending the ESMO 2019 congress, that will end by today. The ESMO congress is one of the global stages for the exchange and debate of cancer. The programme is impressive and as Patient Advocates we decided to attend the meetings focusing on our area of interest, the programme called ‘Patient…Continue reading The Patient Advocacy Track at ESMO 2019 in Barcelona
Healthcare should be based on the best evidence available, from whatever source. ‘Evidence-based medicine encompasses the integration of clinical expertise with the best available external evidence alongside with patient preference’ (DavidL. Sacket). This is often narrowed down to statistically valid evidence, whose meaningfulness evaporates in the context of patients. Doctors have years of experience and…Continue reading Evidence, Arrogance, Ignorance, Eminence: Update on our next Annual Congress: 29-31 January 2020
Klik hier voor de Nederlandse versie.. Pancreatic cancer is one of the deadliest forms of cancer. Every year 95,000 people in Europe die from pancreatic cancer. In the Netherlands that is 8 to 10 people a day. Because survival is so low, the prevention of pancreatic cancer in high-risk groups may be preferable above early…Continue reading PREVENTIVE INTERVENTION ON PATIENTS WITH AN INCREASED RISK OF PANCREATIC CANCER
For English click here.. Alvleesklierkanker is één van de dodelijkste vormen van kanker. Jaarlijks sterven 95.000 mensen in Europa aan alvleesklierkanker. In Nederland zijn dat 8 tot 10 mensen per dag. Omdat de overleving zo gering is kan het voorkomen van alvleesklierkanker bij hoog risico groepen de voorkeur hebben boven vroege opsporing en behandeling. Voor…Continue reading PREVENTIEF INGRIJPEN BIJ PATIËNTEN MET EEN VERHOOGD RISICO OP ALVLEESKLIERKANKER
Many technologies, diagnostics and treatments that are of great added value in the fight against cancer do not reach the patient or do not reach them quickly enough. Sometimes effective new methods are not implemented or put into practice. This is harmful to the patient and her loved ones and costs society a lot of…Continue reading RELIABLE INFORMATION FOR PATIENTS!
Inspire2Live doet dringende oproep aan Kabinet en Kamer: verbied niet het roken maar de verkoop van tabak. Inspire2Live, de internationale organisatie van Patient Advocates, roept Kabinet en Kamer aan de vooravond van het Kamerdebat over het preventieakkoord op om de verkoop van tabak te verbieden. Peter Kapitein van Inspire2Live: “In de inleiding van het preventieakkoord staat:…Continue reading INSPIRE2LIVE: VERBIED NIET HET ROKEN MAAR DE VERKOOP VAN TABAK
During our West Coast Road Trip Peter Kapitein, Piarella Peralta and me visited the Pancreatic Cancer Action Network PanCAN: http://www.worldpancreaticcancercoalition.org/) office in Los Angeles. This organization is dedicated to fight pancreatic cancer, being one of the world’s thoughest cancers. Like I2L PanCAN attacks the disease on all fronts: research, clinical initiatives, patient services and advocacy….Continue reading PANCREATIC CANCER ACTION NETWORK
Are you a (former) cancer patient (or loved one) and do you want to become involved as a Patient Advocate by: giving talks and presentations advising boards and institutions becoming a partner in research strongly influence the way diagnostics, drugs and treatments are developed and brought to the patient being activistic implementing better and best…Continue reading HOW TO BECOME A PATIENT ADVOCATE