News – Page 2 – Inspire2Live

Evidence, Arrogance, Ignorance, Eminence: Update on our next Annual Congress: 29-31 January 2020

Healthcare should be based on the best evidence available, from whatever source. ‘Evidence-based medicine encompasses the integration of clinical expertise with the best available external evidence alongside with patient preference’ (DavidL. Sacket). This is often narrowed down to statistically valid evidence, whose meaningfulness evaporates in the context of patients. Doctors have years of experience and…Continue reading Evidence, Arrogance, Ignorance, Eminence: Update on our next Annual Congress: 29-31 January 2020

PREVENTIVE INTERVENTION ON PATIENTS WITH AN INCREASED RISK OF PANCREATIC CANCER

Klik hier voor de Nederlandse versie.. Pancreatic cancer is one of the deadliest forms of cancer. Every year 95,000 people in Europe die from pancreatic cancer. In the Netherlands that is 8 to 10 people a day. Because survival is so low, the prevention of pancreatic cancer in high-risk groups may be preferable above early…Continue reading PREVENTIVE INTERVENTION ON PATIENTS WITH AN INCREASED RISK OF PANCREATIC CANCER

PREVENTIEF INGRIJPEN BIJ PATIËNTEN MET EEN VERHOOGD RISICO OP ALVLEESKLIERKANKER

For English click here.. Alvleesklierkanker is één van de dodelijkste vormen van kanker. Jaarlijks sterven 95.000 mensen in Europa aan alvleesklierkanker. In Nederland zijn dat 8 tot 10 mensen per dag. Omdat de overleving zo gering is kan het voorkomen van alvleesklierkanker bij hoog risico groepen de voorkeur hebben boven vroege opsporing en behandeling. Voor…Continue reading PREVENTIEF INGRIJPEN BIJ PATIËNTEN MET EEN VERHOOGD RISICO OP ALVLEESKLIERKANKER

RELIABLE INFORMATION FOR PATIENTS!

Many technologies, diagnostics and treatments that are of great added value in the fight against cancer do not reach the patient or do not reach them quickly enough. Sometimes effective new methods are not implemented or put into practice. This is harmful to the patient and her loved ones and costs society a lot of…Continue reading RELIABLE INFORMATION FOR PATIENTS!

INSPIRE2LIVE: VERBIED NIET HET ROKEN MAAR DE VERKOOP VAN TABAK

Inspire2Live doet dringende oproep aan Kabinet en Kamer: verbied niet het roken maar de verkoop van tabak. Inspire2Live, de internationale organisatie van Patient Advocates, roept Kabinet en Kamer aan de vooravond van het Kamerdebat over het preventieakkoord op om de verkoop van tabak te verbieden. Peter Kapitein van Inspire2Live: “In de inleiding van het preventieakkoord staat:…Continue reading INSPIRE2LIVE: VERBIED NIET HET ROKEN MAAR DE VERKOOP VAN TABAK

PANCREATIC CANCER ACTION NETWORK

During our West Coast Road Trip Peter Kapitein, Piarella Peralta and me visited the Pancreatic Cancer Action Network PanCAN: http://www.worldpancreaticcancercoalition.org/) office in Los Angeles. This organization is dedicated to fight pancreatic cancer, being one of the world’s thoughest cancers. Like I2L PanCAN attacks the disease on all fronts: research, clinical initiatives, patient services and advocacy….Continue reading PANCREATIC CANCER ACTION NETWORK

HOW TO BECOME A PATIENT ADVOCATE

Are you a (former) cancer patient (or loved one) and do you want to become involved as a Patient Advocate by: giving talks and presentations advising boards and institutions becoming a partner in research strongly influence the way diagnostics, drugs and treatments are developed and brought to the patient being activistic implementing better and best…Continue reading HOW TO BECOME A PATIENT ADVOCATE

INSPIRE2LIVE UPDATE: ‘WHAT DO WE LOBBY FOR?’

Ban on tobacco sales Inspire2Live, has in talks with various members of the permanent committee on health of the Dutch parliament given its view on tobacco sales and the infringement it forms on the public right to health. We have made an appeal not to forbid the smoking itself, but to forbid the sales of…Continue reading INSPIRE2LIVE UPDATE: ‘WHAT DO WE LOBBY FOR?’

Inspire2Live Update – How we patient advocates work

A Patient Advocate is an inspired and committed individual with a unique gift to accelerate better cancer prevention, diagnostics, treatment and after care. We meet up to support each other and create bigger impact. The essence of Inspire2Live (I2L) is bringing together patients, researchers and clinicians to accomplish our mission. I2L is a platform of…Continue reading Inspire2Live Update – How we patient advocates work

Inspire2Live Update: ‘Life is about sorrow and joy!’

My name is Tielo Jongmans. I am a Patient Advocate, involved in governing Inspire2Live, and in implementing a number of projects. Today (July 17) has given me three of the greatest presents of my life. One was holding in my arms my first grandchild, Sophie, a perfect birth, of a perfect child to a perfect…Continue reading Inspire2Live Update: ‘Life is about sorrow and joy!’