Civil disobedience is not our problem. Our problem is civil obedience.’ Howard Zinn Something terrible happened in healthcare that doesn’t benefit patients. Actually, it is what we patient advocates call ‘Dying is safer’. For some of the stakeholders in the Medical Industrial Complex it is safer to let patients die than to act. We can think of experimental medicines for…Continue reading A Patient Advocate’s view
The World Campus is operational since September 2020. We have been joined by my many countries and more are to follow*. Our spearheads are science, peer facilitation, prevention in action and BUCS for all. Today’s update will be about the latter: Bottom-Up-Cancer Support for all. BUCS for ALL We have started creating a basic package…Continue reading Bottom-Up Cancer Support for ALL
A progress update It started out as a distant dream, but more and more experts are coming on board, and financial funding is being concretely discussed with strong partners. So here is an update on what it is and where we stand with the Open Source Pharma project. The project is expected to start preparations…Continue reading Inspire2Live project Open Source Pharma
Introduction Over the recent past, efforts aimed at getting a good picture of the global burden of cancer has brought into focus disparities in the availability of data among different regions. Unlike the situation in developing countries, many of the industrialized countries have well-grounded data collection systems that inform their cancer prevention and control programs….Continue reading Cancer Registries for Action
Over the next decades, the global incidence of cancer is projected to increase significantly. This phenomenon is largely driven by an increase in lifestyle-related cancers due to global economic and demographic transitions. As causes of cancer and key targets for primary prevention, lifestyle factors such as smoking, alcohol intake, obesity, diet, and physical inactivity, sleeping…Continue reading Lifestyle and Cancer
A central regulative idea of Inspire2Live is the pooling of resources. When we started Inspire2Live in 2010, we wanted to bring the best cancer researchers from Europe and North America together in one “pool”. Our biggest success was the speeding up of organoid research for cancer. Hans Clevers, at the time director of the Hubrecht…Continue reading The World Campus: where are we going
Inspire2Live has many friends but few donors. This is caused by the way in which we tell our story. You only need to look at our website: a treasure trove of science, dynamism, weekly Updates, World Campus. But also complex and demanding content. High Science and High Emotion. Our answer to the question “What is…Continue reading The Voice of the Cancer Patient
Two weeks ago, my contribution to these pages concerned screening for prostate cancer. I wished to make a point regarding the importance of better understanding our felt reasons for demanding screening versus the rationality of such a demand. I wrote as a man without properties. But I am a particular man, not a robot or…Continue reading Prostate cancer chronicles – Part I
In early 2020, when Covid-19 was rapidly developing into a disastrous pandemic, many patients died of Acute Respiratory Distress Syndrome, a condition of the lungs caused by an over-reaction (cytokine storm) of the immune system. It was pointed out at the time that a common drug, Lidocaine (70 years old, dead cheap, administered billions of…Continue reading Lidocaïne: Trials and tribulations of Classic Drug Development
The British National Health Service tests for prostate cancer only when there are clearly identified symptoms, determined by a doctor. Even though many men and their family have reasons to want a test before they have clear symptoms. There is a rationale for the reluctance to test: the prostate cancer test when applied to men…Continue reading The Power of the Patient Intellect
