This is the final update where we present a section of our prospectus. It may be the most controversial part. The participation model of the World Campus is relatively open. We expect this to be a strength. Despite many countries having contrasting political cultures, we have chosen for a model where a hub is immediately…Continue reading Hello World Part III
It has been just over a year since we took the initiative to help the Dutch Member of Parliament, Léonie Sazias (50PLUS) in writing an initiative on access to Whole Genome Sequencing (WGS). Later on her efforts were joinend by two other Members of Parliament, Joba van den Berg (CDA) and Hayke Veldman(VVD). The biggest…Continue reading Inspire2Live lobby for better and faster access to diagnostics based on Whole Genome Sequencing successful
Cancer is a mobile disease. It changes while you look at it. Treat it like tuberculosis; 4 drugs, for one year, at the same time! (David Tuveson, Cold Spring Harbor Laboratories) Cancer in a human body changes continuously and we will not be successful when using only one medicine, 4 medicines (or 3 or 5)…Continue reading Precision Medicine Forum Patient Week
In my earlier update I wrote that we are in business with the International Agency for the Research of Cancer, which is part of the World Health Organisation (IARC and WHO respectively). Here is a remark by the official that I found particularly interesting. Clement Chauvet at some point said the WHO is often perceived…Continue reading Hello World—part II
[English version below] Over Kanker Gesproken. Zo heet de podcastserie waarin Michel Daenen inmiddels een hele reeks gesprekken over kanker gepubliceerd heeft. De meeste zijn met mensen met kanker, sommige met professionals, en een enkele met een professional met kanker. Afgezien van zijn aangeboren talent als interviewer heeft Michel ook veel ontdekt en geleerd in…Continue reading Praten met mensen met kanker
on the commemoration of the World Cancer Day 2021 The outbreak of SARS-CoV-2 infection has caused disruption and challenges across the world and we are facing a difficult time, unprecedented since the influenza pandemic of 19181,2. There are more than 100 million registered cases worldwide, prompting the WHO to declare a Public Health Emergency in…Continue reading COVID-19 vaccination and cancer patients; Inspire2Live statement
“We are in business.” This is how we concluded an intensive meeting with the International Agency for the Research of Cancer (IARC), which is part of the World Health Organization (WHO). It happened last week. The World Campus will soon have an alliance with IARC. But who are we, really? This is part I of…Continue reading Hello World – Part I
Welcome to the updated version of this post. It now contains links to the virtual tour of the Hartwig Medical Foundation (HMF) and the Questions & Answers from HMF to Inspire2Live. We patient advocates want the whole genome sequencing (WGS) approach as a guidance to choose the best treatment possible for each patient. We have…Continue reading Each patient’s cancer has to be sequenced in order to choose the best possible treatment
HENARAN charitable foundation is a national cancer patient advocacy organisation in Armenia – a small land-locked country in the South Caucasus with 3mln population not having adequate access to cancer care. I have the honour to lead HENARAN. The first contact between Inspire2Live and HENARAN was established by Peter Kapitein in June 2019, and a…Continue reading ‘The light in complete darkness’
Cinderella Therapeutics started as a foundation to bring ‘stepchild’ medicines (medicines that no company wants to produce) for a fair price to patients. From the beginning, there was a warm relation on joint initiatives with Inspire2Live. We share our focus on the patient and our activistic approach as well. The founder of Cinderella, Dick van…Continue reading Cinderella donates to the patients
