Barbara & Mark Moss

Home > Barbara & Mark Moss

Email address: bmoss2754@gmail.com

Phone number: +447840864606

Who am I

I have been a Patient Advocate of Inspire2Live. Since 2013 along with Mark, my husband and carer.

Why

I was diagnosed late at A&E with St. IV colorectal cancer, having been misdiagnosed for 6 years. My life is attributable to my loving family who gave me strength and encouragement and also to our personal involvement in my treatment. A three month prognosis has turned out to be 3 years of treatment followed by 10 years cancer free life! Our lives turned upside down has now been turned to a new life, much richer, in being involved , as advocates, in encouraging a new way of looking at cancer survival. Overall survival is not always what the patient wants; quality is often the most important element.
I am a patient advocate, not a scientist, who represents a member of the public through my engagement.

Specialties

Both Mark and I work voluntarily for several patient organisations along with Inspire2Live: Bowel Cancer UK, DiCE EuropaColon, EAPM, EMA, NICE and we believe that sharing information is the quickest way to help cancer patients to survive. I was an English teacher for 30 years. Now, Mark & I have the independence to speak our minds because our work is voluntary.

Involved projects

 

Cancer as the new pandemic

Due to COVID-19, it appears that many cancer cases have either not been diagnosed, or have been diagnosed at a much later stage. We believe that this will have an […]

Lifestyle and cancer

Exploring beyond diagnosis and treatment, this initiative addresses the broader impacts of cancer on patients and their families, offering crucial support and information. This is probably the broadest topic which […]