Inspire2Live is organizing congresses to bring together all the groups that support the well being of patients and their loved ones. This involves of course patients and also clinicians and researchers, industry and health insurances representatives and people from the government. In the cooperation they will benefit the patient in everything they do.
To educate everybody that plays his role in this field we organize congresses.
Sometimes bigger ones with more then hundred participants and sometimes more smaller symposia with 10 or 20 invited visitors. But always it will be inspiring and different. Not just listen to what others have to tell but listen, discuss and work. All in order to deliver. Deliver for patients and working towards our end goal: a better quality of life for the patient and her loved ones.
In health care it is often spoken about the asymmetry of the relationship between patients and citizens. Our patient advocates constantly and incessantly bring symmetry back to this relationship. At our congresses it is evident how equal participation from stakeholders and patients yield greater results for patients themselves and society as a whole. Look at our achievements up till now!
Inspire2Live works on a Discovery Network on ‘Better ways of financing research and treatments in health’. Inspire2Live sees a gap between what the regular way of working is financing and what is really needed to get cancer under control. Most of the money is spend in research and researchers that weren’t able to solve the problem in the past decades. Now it’s time to really think out of the box and work with the best of the best and combine the experienced hands and beginners minds. The Discovery network will be planned in the second half of 2018 and will be in ‘some place in the world.’
Inspire2live collaborates with Stichting Mijn Data Onze Gezondheid (Foundation My Data Our Health), ZonMw, Noaber Foundation, Health Holland, ABNAMRO, Waag and others to organize the international conference: “BeyondRCT -2: towards co-operative citizen science in food and health”.
BeyondRCT-2 is a follow-up of the successful 2016 Inspire2Live co-hosted. BeyondRCt-2 aims to showcase and strengthen the potential of citizen science for health. Citizens, and certainly cancer patients, engage in all kinds of self care to sustain and improve their wellbeing or recovery, through food, lifestyle etcetera. Their highly contextualized knowledge is crucial for the development of personalised health approaches, and forms a natural and much needed counterpart of highly sophisticated and often high-tech approaches to deliver personalised medicine. To fully appreciate the richness of citizen observation and experimentation on health, there is a strong need to broaden the traditional research repertoire, that is dominated by a focus on Randomised Controlled Trials. See e.g. this blog of our patient advocate Gaston Remmers )
Embracing citizen science in health promises to lead to quicker and more personalised product and therapy development.
Inspire2Live works on a Discovery Network on ‘Integral therapies’. Therapies that combines the strength of targeted therapies, immunotherapy and therapies based on the metabolism. We are convinced when bringing together the best of the best in their field of expertise, we will make a strong and important contribution to getting cancer in control. Moreover will we combine the experienced hands and beginners mind to bring in the unspoiled thinking. The Discovery network will be planned in the second half of 2018 and will be in ‘some place in the world.’
Our next Annual ‘We want to be at the table and not on the menu’ will be January 30 (diner), 31 and February 1 in Amsterdam.
‘Health is a matter of all citizens. The unborn, the young, the young adult, the adult and the elderly.’ We have to take care that it is not only important when we get sick, when we are diagnosed with cancer. It matters always and it needs to be emphasized when we are still healthy.
We better start thinking, discussing and working on it now. We want to be at the table and not on the menu!