Cancer Research, Patient and Policy Advocate (Since 2003)
Facebook: https://www.facebook.com/diane.heditsian (not used for advocacy)
WHO AM I?
I have served as a highly trained and engaged research, patient and policy advocate for eighteen years. My advocacy work is driven and informed by my four breast cancer diagnoses. I am an entrepreneur and senior level communications professional with thirty-nine years of experience developing, implementing and managing effective communications, marketing and educational programs for patients and physicians through my global life sciences communications agency, deClarity. I am a passionate and sought after keynote speaker for clinician, researcher, patient, journalist and payer audiences, serving as a liaison among all stakeholders. I currently support Laura Esserman, MD, MBA and Laura Van‘t Veer, Ph.D on two national breast cancer clinical trials, the WISDOM Study testing whether a precision, risk-based approach to breast cancer screening is superior to current standard of care and the I-SPY trial, a neoadjuvant and adaptive platform trial testing novel agents for patients with high risk breast cancer. My advocacy work is carried out primarily through University of California, San Francisco, Stanford Medicine, National Coalition for Cancer Survivorship, Komen Advocates in Science, Living Beyond Breast Cancer and Armenian Healthcare Association of the Bay Area.
Why have I devoted my last two decades to improving cancer prevention, screening, diagnosis, treatment, and survivorship for women. If not me, who knows the system from inside and out, who has experienced it four times and survived, then who better to represent the patient perspective, to bring the patient focus to the forefront and to present patient priorities, concerns and preferences to those who can make a difference? My goal is to ensure that it is better for those who come after me because I have seen too many women and families suffer.
Optimizing clinical trial design, recruitment and retention; translational research; precision medicine; drug development; survivorship care; genomics; patient empowerment; health equity; patient/provider communication; peer counseling; keynote speaker; medical science writer for lay audiences, health and cancer care for the people of Armenia.