Better evidence. We want evidence that we can understand. Regarding screening, treatment, rehabilitation, prognosis, et cetera. Where can we find this evidence? And how do we represent this evidence in such a way that we can understand it?
Better treatments. In a process of shared decision-making, doctors and patients must respect each other. Doctors must take into account quality of life issues, patient’s particular preferences and possible harms of a treatment. What is the best treatment for me, and why? How do I decide? What alternatives are there?
Better networks. We not only want the best science and scientists, we also want to be able to participate in defining the research agenda. Patients need the capabilities but also a chair at the table where the agenda is formulated and decisions are made.
Many, including health professionals and their patients, journalists and politicians do not adequately understand and internalize health information. This fact pertains to how many reason about, conceptualize and interpret health information and questions. As a result it is hard for patients to know what the information regarding their illness means for them personally. For example, evidence is often hard to interpret or difficult to explain. What does a screening result mean for you? How to judge whether the benefits of a treatment are substantial enough to risk the harms?
At Inspire2Live we constantly look for ways to take science to new levels in terms of patient motivation, cooperation and results. Better health care is an option!
In 2011 we launched our Understanding Life program. The program embraced the view that cancer is a life threatening disease and a systemic problem. It is among the leading causes of death worldwide. About 12 million people are newly diagnosed with the disease and 7.5 million people die from it every year. The problem is systemic because it results from the interaction of a complex set of influences: biological, social and life histories. Our genes are very important, but so are our cells and organs. The way we eat, drink, what we inhale, move around is critical. Smoking, for example, causes cancers in the lung, and in many countries about 20%-30% of the cancers is due to smoking. And we also have to look at life historically. We are endowed with a body and a set of genes that grows over time: your body is the result of generations of genes combined into new sets of genes, one group derived from your mother and the other derived from your father. Our personal life begins with two merging cells. We grow up, become adults, get children ourselves and get old. Read more..