Patient Advocate: Marjolein Colenbrander
I am a writer, social- and sports psychologist, communication-advisor in youthcare and I have my own company ‘Colenbrander Communicatie’.
About 15 years ago our then 2-year-old son got cancer; a rhabdomysarcoma in the nasal pharynx. The book I wrote about that experience was published in 2018 and is titled ‘Mevrouw, uw kind wordt nooit meer beter’. The story deals about how patients and relatives are approached by medical practitioners, the rigidity of protocols in healthcare and the impact of cancer on familylife.
In January 2016 our family was confronted again with a life threatening disease. My husband Bart was diagnosed with pancreatic cancer. Bart’s motto: ‘When the going gets tough, the Tough get going!’ As his condition got worse during the period of his illness, he showed us the real meaning of these words. Two years later on the 8th of January 2018 he passed away at the age of 50. With his knowledge and kindness he inspired the lives of me, our children and many others.
Bart was a Patient Advocate. He felt a great need to stand up for patients’ rights.
It feels like a great privilege to get the chance to use my professional knowledge for the benefit of Inspire2live in Bart’s place.